RARE FIND FOUNDATION LIMITED

Giving Philosophy

The foundation operates from a place of personal experience, aiming to fill a critical gap in Australia's rare disease support landscape. Its approach combines direct family support with systemic advocacy, awareness-building to promote carrier screening and early diagnosis, and research data collection to inform future treatments. The focus is on empowering families to be active participants in their care while making every precious moment count.

Tips for Applicants

Given the foundation's small scale and national focus on a very specific disease area, direct engagement may be more effective than formal grant applications. The foundation appears to prioritize personal connections and hands-on support over competitive grant processes. Families seeking support should contact them directly via their website or email. Researchers and healthcare professionals interested in the GM2 disease registry should reach out to board member Dr. Nicholas Smith.

Financial History (4 years)