DANIEL FERGUSON LGMD FOUNDATION LTD

Giving Philosophy

The foundation works across three strategic pillars: looking inward to strengthen community among LGMD patients, looking outward to increase visibility and equity in healthcare access, and looking forward to discover and implement solutions. Their values of reliability, awareness, and service guide their approach to enabling those with LGMD to better control their future through community building, advocacy, and practical support.

Tips for Applicants

As a small, focused foundation supporting the LGMD community, potential applicants should demonstrate clear understanding of LGMD and its impacts, particularly LGMD R1 which accounts for 30% of all LGMD cases. The foundation partners with other muscular dystrophy organizations and appears to focus on community support, advocacy, and increasing awareness of this rare disease. Given its size and recent establishment (2020), focus on grassroots initiatives that strengthen community connections, improve healthcare access for LGMD patients, or advance understanding of the disease. The foundation is the only Australian organization specifically focused on LGMD, making it particularly interested in filling gaps in support and research.

Financial History (2 years)