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Annual Giving
$100K
Grant Range
$5K – $500K
Programs
1 (1 open)

Tips for Applicants

Applicants should demonstrate how their research will lead to improved clinical outcomes and treatments for Prader-Willi syndrome, with a focus on both short and long-term impact. Highlighting potential broader implications for public health challenges such as obesity and mental health would also be beneficial.

Giving Philosophy

The foundation approaches its giving by investing in cutting-edge research focused on both short and long-term clinical outcomes and treatments for Prader-Willi syndrome. It values research that not only directly benefits those with the condition but also has the potential to inform broader public health challenges like obesity and mental health.

Notable Grants

$65,500 to Australian Chromosome 15 Biobank (via Perpetual IMPACT Philanthropy grant)
$50,000 to PWS Healthcare Model project
$25,000 Newborn Experience grant
$10,000 to support PhD student Meg Iminitoff's epigenetics research
Co-funding with FPWR for exercise training research with Prof Nora Shields

ACNC Financial History

YearGrants GivenRevenueTotal AssetsNet Assets
FY2023
$412K$795K$31K
FY2022
$91K
$379K$637K$633K
FY2021
$157K
$282K$429K$422K
FY2020
$257K$377K$372K
FY2019
$215K$256K$254K
FY2018
$218K$136K$124K
FY2017
$36K$59K$59K
7yr total$248KSource: ACNC Annual Information Statements

Programs & Opportunities (1)

1 open · sorted by deadline · last checked 27 February 2026 (114 days ago)

2026 Prader-Willi Syndrome Research and Family Conference

Grantopen

Three-day conference in Brisbane for researchers, clinicians, families and community advocates

Eligibility: Researchers, clinicians, families, and community advocates can apply
How to apply: Buy tickets through the provided link, using applicable discount codes
Closes 28/08/2026Apply →

Grants in Database (1)

Focus Areas

health
Geographic
AU-National

Financial Details

Source of Wealth
Primarily from corporate backing and public donations.

Board & Leadership

Joe Proietto
director
ACNC
Johnson Amy
director
ACNC
ACNC
ACNC
Susan Blair
director
ACNC
foundation_board
Ian Cooke
board member
ACNC
Katherine Garvey
board member
ACNC
Thomas Crookes
board member
ACNC
Linked from structured person roles rather than unstructured foundation summary text.

Data Sources

Profile quality: low
Foundation profile updated: 10 March 2026 (104 days ago)
Grant/program scan updated: 27 February 2026 (114 days ago)
Website pages scraped: 4
Added: 27 February 2026 (115 days ago)
View on ACNC Register →