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Annual Giving
$25K
Grant Range
$1K – $100K

Tips for Applicants

Applicants should align with the foundation's focus on CTNNB1 syndrome or other rare genetic diseases. Proposals should demonstrate evidence-informed approaches, clear milestones, defined clinical pathways, and high potential for impact. Exploratory research is not currently funded. Emphasize how your proposal addresses therapies not covered by conventional funding bodies for individuals, or targeted research with a clear path to clinical application.

Giving Philosophy

The foundation believes every child deserves to live their fullest life and understands the profound impact of rare diseases. They focus their limited resources on high-potential impact, evidence-informed therapies and research with clear milestones and defined clinical pathways, prioritizing real change over conventional or exploratory approaches. They are committed to ensuring support directly benefits children with rare diseases, with directors not receiving payment for their service.