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Annual Giving
$100K
Grant Range
$5K – $500K

Tips for Applicants

IDFA is not a grant-making foundation but a patient advocacy organization. Those seeking funding should look to government health grants, pharmaceutical company sponsorships, or medical research councils. IDFA may accept partnerships for educational programs or patient support initiatives.

Giving Philosophy

IDFA is a patient advocacy organization, not a traditional grant-making foundation. It focuses on direct support to patients and families through educational programs (like the PIE Program), resources (NDIS guidance booklets), community engagement, and advocacy for newborn screening. It raises funds through donations, membership, events, and fundraising to sustain its operations and member services.

ACNC Financial History

YearGrants GivenRevenueTotal AssetsNet Assets
FY2023
$2.1M$529K$342K
FY2022
$1.9M$395K$348K
FY2021
$2.0M$476K$55K
FY2020
$962K$335K$238K
FY2019
$1.3M$307K$223K
FY2018
$1.3M$236K$213K
FY2017
$957K
$1.2M$251K$197K
7yr total$957KSource: ACNC Annual Information Statements

Focus Areas

healthindigenous
Geographic
AU-National
Recipients
youthageddisadvantageddisabilityrural remoteindigenous

Financial Details

Source of Wealth
IDFA is a not-for-profit charity, not a private foundation founded with personal wealth. It operates through donations, member fees, event fundraising, and potentially government grants. Revenue is derived from philanthropic sources rather than a founder's wealth.

Board & Leadership

Adam Friederich
board member
ACNC
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Anna Cauchois
board member
ACNC
Anna Sullivan
board member
ACNC
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Brendan Peek
board member
ACNC
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Carolyn Dews
public officer
ACNC
Dews Carolyn
public officer
ACNC
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Geraldine Dunne
board member
ACNC
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Hayley Teasdale
board member
ACNC
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Javeria Ahmad
board member
ACNC
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Louise Grant
board member
ACNC
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Melanie Wong
board member
ACNC
Natasha Moseley
board member
ACNC
Roslyn Chataway
board member
ACNC
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Linked from structured person roles rather than unstructured foundation summary text.

Data Sources

Profile quality: low
Foundation profile updated: 15 March 2026 (95 days ago)
Website pages scraped: 5
Added: 27 February 2026 (111 days ago)
View on ACNC Register →