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Phelan-McDermid Syndrome Foundation Australia Ltd

FoundationRegistryHPCABN 87169499601NSW
Relationships
7
Data Sources
2
Revenue
$5K
Tax Payable
Preview
Data as of: 19 June 2026
Found in 2 systemsACNC CharitiesFoundations

Board Interlocks (1 shared directors)

Giving Philosophy

As a small patient advocacy organization rather than a traditional grant-making foundation, the organization focuses on providing direct support to families, connecting them with resources, and raising awareness about Phelan-McDermid Syndrome. Their model centers on peer support and collective advocacy rather than competitive grant programs.

Wealth Source:Appears to be funded primarily through donations and membership contributions. The organization appears to be volunteer-run, likely by parents and families of individuals with PMS rather than funded by a wealthy founder.

Tips for Applicants

This is not a traditional grant-making foundation. Rather than applying for grants, families and researchers interested in Phelan-McDermid Syndrome should connect with the organization for support, collaboration opportunities, or participate in their awareness and advocacy activities. Donations are accepted via PayPal.

Financial History (6 years)

YearRevenueExpensesAssetsSurplus
2022$5K$40K$-34,547
2021$16K$5K$16K
2020$9K$4K$5K
2019$33K$33K$3.3M
2018$56K$25K$31K
2017$76K$76K
0
Grants Given (AU)
$33K
0
Volunteers
10
Donations Received
$5K

Community Evidence

External Evidence

Identity

GS ID
AU-ABN-87169499601
ABN
87169499601
Sector
health
Financial Year
2022

Focus Areas

Themes
health
Geography
AU-NSW
Target Recipients
disability
Purposes
Health
Beneficiaries
FamiliesDisability

Board & Leadership (3)

Financials

Revenue
$5K
0

Method

Match Confidence
registry
Cross-references
2 datasets
Match Key
ABN
Relationships
7

Matched by Australian Business Number (ABN) — high confidence. This entity was found across multiple government datasets using the same ABN.

Data Sources

ACNCFoundations

JusticeHub

External Link

This entity is also tracked in JusticeHub with 0 interventions and 0 evidence records.

External ecosystem profile linked from GrantScope for additional context. JusticeHub content is maintained separately.

View on JusticeHub

Location Intelligence

Postcode
2570
Locality
Camden - Ellis Lane
Remoteness
Major Cities of Australia
SEIFA Disadvantage
Decile 8/10
LGA
Wollondilly
Entities in Area
470
View on Power Map

Disability Market Context

NDIS Layer
State Providers
4,591
Thin Districts
2
Very Thin
1
Local Alternatives
0
23 community-controlled orgs in postcode

This organisation shows disability-related delivery signals. The strategic question is whether it sits inside a resilient market, a thin market, or a captured market where large providers take most of the money and local alternatives are scarce.

Thinnest Districts In NSW
Far West49 providers
Far West51 providers
Southern NSW242 providers
Captured Markets
Far West95%
Mid North Coast89%
Western NSW75%
Murrumbidgee71%